Each study site across the country has multiple research scientists who are experts in certain areas. They work together to design and conduct the research. When the study is complete and all the data has been analyzed, these researchers will share the results with other autism researchers and the public through journal articles and presentations.
Dr. Julie Daniels, PhD
Principal Investigator, SEED
Dr. Daniels oversees all aspects of all phases of NC SEED. She is Professor of Epidemiology and Maternal and Child Health at UNC Chapel Hill.
Dr. Rebecca Edmonson Pretzel, PhD
Dr. Pretzel oversees the autism-specific developmental assessments and conducts some of the child developmental assessments. She is Director of Clinical Services and the Psychology Section Head at the Carolina Institute for Developmental Disabilities. She is also Associate Professor of Psychiatry at UNC Chapel Hill.
Dr. Kathleen Thomas, PhD
Dr. Thomas advises the NC research team on issues of health service use by families. She is a Research Associate at the Cecil B. Sheps Center for Health Services Research and Assistant Professor of Health Policy and Management at UNC Chapel Hill. She specializes in research on the types of services and treatments used by families of children with special needs.
Chyrise Bradley, MA
Ms. Bradley is the Project Coordinator for SEED under the NC-CADDRE. She oversees all participant enrollment and research activities for the study. She also oversees the staff that conducts these activities.
Clinic Visit Coordinator
Ms. Rusyniak assists families with preparing for and completing their clinic visits. She conducts some of the child developmental assessments and works with the study Lab to track biologic samples.
Interview and Call Coordinator
Ms. Kloetzer coordinates the phone contacts with families and conducts the maternal interviews.
The recruiter calls families to invite them to participate in the study. He also schedules study appointments and answers questions from the SEED helpline.
Data Entry Coordinator
Ms. Kepner performs quality checks on study questionnaires we receive from families. She then conducts or oversees data entry of all study questionnaires and assessments.
Graduate Research Assistant
Mr. Rutsohn is a PhD student in the Department of Biostatistics. He will be performing programming and analysis work for the SEED Study.
These staff members organize the research activities and collect study data from families participating in SEED. They work with Children's Developmental Service Agencies, the NC Vital Records office, the UNC Healthcare System, NC Department of Public Instruction, and the UNC Research Registry to recruit families for participation in this study.